WARRINGTON Wolves players have got their kit off to help raise funds for a rare brain disorder which strikes down healthy girls.
Golf Professional, Andy Stevenson from the Mersey Valley Golf Club, whose daughter Beth (pictured) has Rett Syndrome, encouraged the golf loving rugby players to help raise funds for Rett Syndrome Research Trust UK to help find a cure for the disorder – by getting their kit off for a calander.
Warrington Wolves players, Lee Briers, Jon Clarke, Ben Harrison, Michael Monaghan, Richie Myler, Gareth O’Brien, Ben Westwood and Paul Wood and former players Mark Hilton and Gary Hulse agreed to strip off to produce a naked golf calendar for 2011.
Money raised will help accelerate treatments and in time, a cure for people with Rett Syndrome.
Andy said: “I would like to thank everyone from the Wolves for supporting this cause. they have been fantastic.
“Beth has been our inspiration and hopefully all the money raised will help accelerate a cure for this dibilitating condition.”
Rett Syndrome is a debilitating disorder which most often strikes previously healthy little girls just after they have learned to walk and say a few words and begins to drag their development backwards.
They lose acquired skills, normal movement and speech. Girls are left unable to communicate or use their hands to hold, carry or manipulate objects.
Over time, girls who have learned to walk often lose that ability as well. Loss of motor control sets in, essentially locking these girls into bodies that won’t work, leaving them without the ability to make puroposeful movements.
Complications are many, including: Disordered breathing, severe digestive problems, difficulty eating, chewing and swallowing, orthopaedic abnormalities such as scoliosis and fragile bones, disrupted sleep patterns, extreme anxiety, seizures, impaired cardiac and circulatory function, Parkinson-like tremors and sudden and unexplained death
Most girls with Rett Syndrome survive into adulthood, becoming increasingly more disabled over time. Invariably, they need one to one, 24 hour a day care for the rest of their lives. For families living with Rett Syndrome, the prognosis has always been poor, until the reversal experiments of 2007 catapulted the disorder into new realms of possibility, positioning Rett Syndrome to become the world’s first curable brain disorder.
Copies of the Calander priced just £5 are available from Mersey Valley Golf Club, KW Golf on Bewsey Road and will also be on ebay.
Keep up to date at the special facebook page by CLICKING HERE
Andy Stevenson (left) with Warrington Wolves’ Lance Todd Winner Lee Briers and top (L-R) Michael Monaghan, Richie Myler and Ben Harrison get their kit off!
Wolves get their kit off for charity
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